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Teen granted right to return home to die

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Leukemia
heart transplant
Hannah Jones

Everyone did their jobs to the best of their ability, down to a hospital doctor calling a child protection agency to try to make sure that a 13-year-old girl got the life-saving heart transplant she needed.

The problem was, 13-year-old Hannah Jones didn't want the heart transplant. She's been in and out of the hospital for eight of her 13 years, first for leukemia treatments, and then for the cardiomyopathy that was caused by the leukemia treatments. Having spent so much of her time in hospital wards, the unusually mature teen just wants to spend whatever time she has left at home, with her family. But she almost got dragged kicking and screaming back to the hospital anyway.

Her decision is as heartbreaking to her parents as it was mysterious to the doctors treating her, but she's finally convinced everyone (including the social worker) that she knows what she's doing.

To learn more about this heartbreaking case study:
- read this Reuters piece

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"Heartbreaking," but for whom? Is it for the doctors, who won't be collecting a paycheck for a costly heart transplant? Or for the girl, who doesn't even want it? "Heartbreaking." What a horrible pun indeed.

The correct decision was made. No one should EVER be forced to undergo ANYTHING they don't want.

Decubitus position of the patients for long periods of time (that is currently in use) without being performed daily a preventive and suitable physiotherapy for the metabolic and physiologic stimulation of the body represents a serious error in modern medicine, for the most common pathologies. To treat a body in the circumstances of a metabolism that oscillates long periods of time around the basal rate value, is evidently that in these metabolic conditions may additionally appear and other pathologies or latent pathological affections can be released, leading to major pathological complications and sometimes to the complete body collapse.

Particularly speaking is regrettable that the Hannah’s cardiomyopathy was discovered so late, since it may be even the essential cause of the leukemia, according to my concepts on the human physiopathology (published in the Journal of Experimental Therapeutics and Oncology - Volume 6, Number 2, 2007, “Somatic tissues degeneration”).

Obviously, there are certain palliating circumstances, because the Hannah’s cardiomyopathy if it initially existed (if it was the cause of leukemia), its initial stage was relatively imperceptible the cardiomyopathy has evolved progressively. Besides, the initial status of the cardiovascular system was probably not examined as a potential and essential cause of the leukemia.

The intention of this comment is absolutely not to accuse the pediatricians from the Herefordshire Primary Care Trust where Hannah Jones was receiving treatment, because the physiopathological concept above mentioned on the correlation between the heart failure and leukemia is a new concept, it has not yet been implemented in the medical practice and education.

However, the heart transplant is not the best solution in this pathologic case, especially owing to the fact that the physiological degeneracy has inclusively been occurred at the level of specialized nervous areas of the heart from the CNS, in direct proportional relationship with the heart condition.

If Hannah’s leukemia has not been nervously determined by functional nervous disturbances of specialized nervous areas of the bone marrow tissues from the central nervous system (that’s less probable at the age of 4-5 years), and it has only been determined by the heart condition, the physiotherapy can be a valid possibility of treatment. A suitable physiotherapy systematized applied for the physiological stimulation of the cardiovascular system and respectively its specialized nervous areas from the CNS, is able to solve the girl’s cardiomyopathy and implicitly the remission of the leukemia. It is not difficult of applied and the physiotherapy can be performed at home, not in the hospital, it may be accepted by Hannah and her parents having regard to the girl’s emotional state.

Certainly, the duration of physiotherapeutic process will be relatively long time, a few years, about 1-2 hours every day it will be progressively applied in relation to the physiopathological status of the body. Also, these suitable and constant applied physical exercises should be preventively used and after her complete cured (at an adequate intensity), for the general health maintenance. Additionally, I would like to mention within this context that the last aspect (exercise and physical fitness) should have a general character, the physiological and metabolic preventive stimulation of human body tissues is absolutely necessary in the social environmental conditions for avoiding degenerative and pathological processes.

I would be very glad if this short scientific comment (opinion) will favorably influence the decision of this amazing brave girl for a good outcome - and the British medical authorities agree that the solution of physiotherapeutic treatment is scientifically founded and valid for this pathologic case if the Hannah’s leukemia has occurred due to heart condition.

Pavel D.

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