The National Institutes of Health is considering incorporating smartphones and wireless technologies to collect data for the Precision Medicine Initiative and is seeking public feedback on the idea.
The organization is looking for input from the public, scientists and healthcare stakeholders, it notes on its website. Comments are open until July 24.
Some considerations it lists include willigness of participants to have smartphones or other mHealth devices with them every day to track activity; whether participants who don't have smartphoes would upgrade at no expense; and how often they would let researchers collect the data from their devices.
President Barack Obama announced the Precision Medicine Initiative early this year, and last week the administration detailed new commitments to the program.
Those included a rough draft for guiding principles in regard to privacy and trust when it comes to precision medicine projects. It offers guidance on governance; transparency; data sharing, access and use; data security and more. In addition, the Office of the National Coordinator for Health IT and Office for Civil Rights will be working together to address any barriers that prevent patients from obtaining their data, according to the fact sheet.
The NIH is taking a leading role in the initiative, includuing a working group of the advisory committee to the National Institutes of Health (NIH) Director, which will consist of precision medicine experts who will seek public input on the development of the initiative.
For more information:
- here's the announcement
White House announces Precision Medicine Initiative commitments
NIH team to help shape Precision Medicine Initiative
Obama touts cybersecurity, personalized medicine efforts in State of the Union address
Researchers offer guidance on clinical use of genomic tests